Internal Reference Number: FOI_7765
Date Request Received: 16/02/2024 00:00:00
Date Request Replied To: 09/04/2024 00:00:00
This response was sent via: By Email
Request Summary: Trust response to NICE Quality Standard 204 on Fetal Alcohol Spectrum Disorder
Request Category: Companies
| Question Number 1: NICE Quality Standard 204 on Fetal Alcohol Spectrum Disorder was published 16 March 2022 - https://www.nice.org.uk/guidance/qs204 Please confirm, has this quality standard been circulated to each team and service in your network? | |
| Answer To Question 1: The standard was circulated to our Trust staff only. This would not therefore include community services. | |
| Question Number 2: Which teams/organisations/ leads have identified that NICE Quality Standard 204 is applicable to them. | |
| Answer To Question 2: Not applicable to the Trust | |
| Question Number 3: Please confirm if the Trust leads for a) children and young people (aged 0 to 25); b) children and young people with special educational needs and disability; c) safeguarding (all-ages); and d) learning disability and autism (all-ages) have to date included consideration of FASD and implementation of the NICE FASD Quality Standard 204 in their decision making about service provision and assessment of local need. If so, for each of the identified leads please explain how and provide any related documents. | |
| Answer To Question 3: The NICE quality standard is applicable to the community paediatric and therapy team. Our Trust is not commissioned to provide any of the aspects covered by the service standard relating to paediatrics. This falls under the remit of HCRG. However, it is standard practise to ask about alcohol/ other drugs and medicine use in pregnancy whenever we come across a child with undiagnosed or suspected neurodevelopmental or neurological concerns and all paediatricians cover physical signs of FASD as part of their training so we are well placed to make a referral for an assessment if this has not been thought about by other teams involved in the childs care. I do not believe that our Trust has the responsibility to consider the paediatric aspects of the quality standard in service provision/ assessment of local need – this responsibility sits with the ICB and the relevant providers of community services. The leads mentioned would not be expected to have documents related to FASD quality standards. | |
| Question Number 4: If your NICE lead or other relevant person has created a review sheet, please provide that with a breakdown of every statement in the quality standard by structure, process and outcome measures. | |
| Answer To Question 4: N/A | |
| Question Number 5: If you don't have a review sheet, please indicate how your Trust is responding to the call for improvements in quality of care outlined in NICE Quality Standard 204 | |
| Answer To Question 5: N/A | |
| Question Number 6: How are you involving stakeholders and/ or tracking patient experiences of your response to the NICE Quality Standard 204? | |
| Answer To Question 6: N/A | |
| Question Number 7: Is there any other document your Trust has created that is related to improvement of quality of care regarding NICE Quality Standard 204? If so, please provide a copy. | |
| Answer To Question 7: N/A | |
| Question Number 8: Has your ICB commissioned a pathway for FASD diagnosis? | |
| Answer To Question 8: The Trust are not aware of a specific commissioned pathway for FASD. We believe that this would be included in the neurodevelopmental pathway and this is how children we get a diagnosis of FASD. | |
| Question Number 9: Please explain the process by which someone with possible FASD would be assessed in your Trust | |
| Answer To Question 9: FASD would not be assessed in our Trust – though we might on occasion come across children with suspected FASD. If we suspected FASD it is likely we would perform investigations as needed to exclude other relevant diagnoses and then we would refer to the local neurodevelopmental pathway and would expect them to follow the quality standards where applicable. We have not specific pathway for suspected FASD within our Trust and it would likely be suspected as a contributing factor or comorbidity when we were seeing them for something else. We on occasion would be involved in coming up with a management plan that addresses neurodisability, or neurodevelopmental difficulties in so far as they impact on any healthcare we provide. For example – we would offer the use of hospital passports to help staff learn how best to communicate with a patient with FASD, we would ensure that they and their carers were involved in decision making about their care, with their permission we would add an alert onto their records that told staff of any autism or learning difficulties, and we would seek to communicate well with any community teams who knew them well. | |
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