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Sunday 22 December 2024
Salisbury Foundation Trust

FOI_6971

Internal Reference Number: FOI_6971

Date Request Received: 17/01/2023 00:00:00

Date Request Replied To: 25/01/2023 00:00:00

This response was sent via: By Email

Request Summary: The diagnosis and treatment of Spinal Muscular Atrophy

Request Category: Companies

 
Question Number 1:
How many patients have a current diagnosis for Spinal Muscular Atrophy (ICD-10 Code G12.0, G12.1, G12.8 and G12.9) at your trust?
 
Answer To Question 1:
Answer: 17 - For patients who have ever been diagnosed with the supplied ICD-10 codes and who haven’t died (according to local records).
 
Question Number 2:
How many patients have been treated in the last 4 months (September to December 2022) with the following products:

Evrysdi (Risdiplam) - total patients

Spinraza (Nusinersen) - total patients

Zolgensma (Onasemnogene) - total patients

Evrysdi (Risdiplam) - new* patients

Spinraza (Nusinersen) - new* patients

Zolgensma (Onasemnogene) - new* patients

*new patients are defined as patients who were not treated with any of Spinraza (Nusinersen), Evrysdi (Risdiplam) or Zolgensma (Onasemnogene) in the previous 4-month period (May to August 2022).
 
Answer To Question 2:
Answer = 0
 
Question Number 3:
Of the total patients treated in the last 4 months (September to December 2022) with Evrysdi (Risdiplam), please provide the number of patients that were treated with Spinraza (Nusinersen) in the previous 4 months (May to August 2022).
 
Answer To Question 3:
Answer = 0
 
Question Number 4:
Of the total patients treated in the last 4 months (September to December 2022) with Zolgensma (Onasemnogene), please provide the number of patients that were treated with Spinraza (Nusinersen) in the previous 4 months (May to August 2022).
 
Answer To Question 4:
Answer = 0
 
Question Number 5:
How many patients have been treated with Zolgensma (Onasemnogene) in the last 12 months (January to December 2022)?
 
Answer To Question 5:
Answer = 0
 
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